In January of this year, we met Shane an amazing little six-year-old born with CHARGE Syndrome. Charge Syndrome is a genetic anomaly affecting approximately one in 12,000 births. In Shane’s case, he was born with a major heart defect requiring multiple medical procedures including two open-heart operations and the installation of a pacemaker. Shane is extremely nearsighted and has colobama which greatly limits his field of vision. He is also profoundly deaf in one ear and moderately deaf in the other. Shane was born with only one functioning kidney. He also has very low muscle tone, which contributes to mobility challenges.
Despite these challenges, Shane continues to be a courageous and curious little boy who loves to explore the world around him cautiously. He has surprised many of his care providers with his progress and recently had his tracheostomy removed, allowing him to begin vocalizing more, although he struggles with language and expression. While Shane has taken a few steps on his own, he is extremely reluctant to do so. His hearing and vision issues make it difficult for him to navigate without support and a reassuring hand. Shane’s family is hoping that a service dog will help Shane develop more confidence and learn about his surroundings, and bridge the gap between his special spirit and everyone he meets.
Thanks in large part to the generosity of the Trinity Rose Foundation, along with the support of Friends and Family… Shane’s New Year’s Wish has come true. It’s Christmas in July for Shane and his new Best Friend Huey!
You can also mail a check to:
112 East Center Street
Berea, OH 44017
Please make a memo note that your donation is in Shane’s honor.